Tuesday, November 2, 2010

2011 PJS Meet and Greet

2011 PJS Meet and Greet

Location, Date and Time are to be determined.

Friday, March 19, 2010

2010 PJS Meet and Greet Information

June 26, 2010 - Saturday
2:00 pm - ???


Dr. Riegert-Johnson and his assistant from the Mayo Clinic in Florida will be joining us again this year. They are planning a short presentation for us.


Reservations have been made for our group at:

The Best Western Garden Inn
1500 Santa Rosa Avenue
Santa Rosa, CA 95404
Telephone: 707-546-4031
Contact person: Donna Renteria

We are under the name "PJS Group" I verified that all personal information is to be kept confidential.

I reserved 10 rooms for 2 nights-June 25 and June 26.

3 king size single rooms - $122 a night
2 queen size single rooms - $117.00 a night
5 double rooms - $122 a night

Please make your reservation 30 days in advance as all rooms we do not confirm will be put back to the general public to reserve.

When you call to make your reservation you can choose one night or two.
Please let them know at the time of the reservation if you need a pet or smoking room. For dogs there is a $15 charge for each dog.

You can cancel anytime up until 4:00 the day of arrival.


If you have any other questions please email Casey at pjsmeetandgreet@yahoo.com.

Hope to see you there!

Monday, January 25, 2010

2010 PJS Meet and Greet

June . 26 . 2010

north california / san francisco bay area . california

why . support group for those with peutz-jeghers syndrome and juvenile polyposis

when . saturday . june . 26 . 2010

location . tbd

goal . to meet and mingle with fellow pjs folks

speaker . in the process of finding a great one

snacks . to be determined

activities . tbd

lodging . discounted rates will be researched

info . more information to come

email . pjsmeetandgreet@yahoo.com

Wednesday, March 4, 2009

2009 - Question and Answer Session

Schedule an appointment with two genetic specialists who manage patients with Peutz Jeghers Syndrome

Douglas Riegert-Johnson, MD
Gastroenterologist and Certified Medical Geneticist
Mayo Clinic Florida

AND

Lauren Spurck, MS
Genetic Counselor
Mayo Clinic Florida

PURPOSE: To address any questions regarding the medical or hereditary implications of PJS at no cost to the patient

WHEN: June 20, 2009

WHERE: PJS 2009 Meet and Greet at Destin Community Center in Destin, Florida

**Interested parties can call genetic counselor, Lauren W. Spurck, at (904) 953-6286. She is available 8am-5pm, Monday-Friday to answer questions regarding our services or assist patients in scheduling an appointment.

Monday, March 2, 2009

2009 - Lodging Detailed Information

Distance information taken from www.randmcnally.com with the Destin Community Center as the starting address. 101 Stahlman Ave, Destin, FL 32541

Courtyard Sandestin at Grand Boulevard

100 Grand Boulevard, Destin, FL 32550
(850) 650-7411 (850) 650-7491 - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 miles


Residence Inn Sandestin
300 Grand Boulevard, Destin, FL 32550
(850) 650-7811‎ (850) 650-7816‎ - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 mil


Destin Pointe
480 Gulf Shore Dr, Destin, FL 32541
(850) 650-0911‎ (800) 624-6017‎
destinpointe.com
EST. DRIVE TIME: 22 minutes EST. DISTANCE: 3 miles

Tuesday, February 17, 2009

2009 PJS Meet & Greet

June . 20 . 2009

destin . florida

why . peutz-jeghers syndrome support group

when . june . 20 . 2009

location . destin community center

goal . to meet and mingle with fellow pjs folks

speaker . in the process of finding a great one

snacks . to be determined

activities . game room with pool . foosball . ping pong

slideshow . photos of folks with pjs and their families

lodging . discounted rates will be researched

info . more information to come

email . pjsconferenceideas@yahoo.com

register . the ezeventplanner site i set up for you to register at is now charging . please send an email to pjsconferenceideas@yahoo.com to register